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Transplants Bone marrow and stem cell transplantation

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  #1  
Old Sat Aug 22, 2020, 06:54 PM
Rarity Rarity is offline
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Puzzled

Hello everyone,

Hope you are all doing well during these times. It's been a while as things have been going very well for my husband. Until the bmb results. It is showing 14% blasts and is consistent with recurrent involvement by a Myeloid Neoplasm with increased blasts. Perplexed as blood counts are fine.

Waiting for the rest of the report. Any ideas would be most appreciated.
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  #2  
Old Wed Sep 16, 2020, 07:58 AM
Rarity Rarity is offline
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Confirmed

My husband has relapsed after transplant to AML. Two years post-transplant MDS and did extremely well all this time. Treatment will be started soon once which regimen is decided. I think on the positive side of this is that his counts remain normal, no other health issues and feels fine. Hopeful in giving him that edge to soldier on. We are remaining positive although hard at times. He is fighter and will beat this once again. Hoping all of you are doing well!

Rarity
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  #3  
Old Thu Sep 17, 2020, 12:31 PM
Marlene Marlene is offline
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So sorry to hear about his relapse. It's a constant battle with these diseases. I hope they are able to get this in check soon. Wishing you both the best.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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  #4  
Old Fri Sep 18, 2020, 03:47 AM
Meri T. Meri T. is offline
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I hope the doctors will do their best for your husband. My doctor said if I relapse, they will do cord blood, not the same donor.

I am sorry you have to go through this again. Your husband is healthy, blood counts good, and you are a strong caregiver. That's some of the best conditions for the regimen already! Sending prayers and positive thoughts your way.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin, liver, stomach, esophagus.
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  #5  
Old Mon Sep 21, 2020, 06:31 AM
Rarity Rarity is offline
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Marlene, Thank you. It is a constant battle as you know all to well. Hopeful a battle to keep on winning. Wishing you and your husband all the best.

Meri, Thank you for the uplifting words. You have been so kind. Thanks for the prayers! Need them again!
Curious about cord blood transplant and why did they mention to do that rather than DLI or second transplant?

As it stands he will have Venetoclax & Aczididine combo. Then possibly a DLI. Possibly a second transplant with a different donor. His problem results in recurring mutations same and new. PETscan showing lesions in various locations inside the body.
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Old Yesterday, 02:48 AM
Meri T. Meri T. is offline
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Cord blood if I relapse is because my hospital is famous on cord blood transplants. And not using my donor if I relapse is because if I relapse, it's because the donor cells didn't work once, so twice is out of the question. Sounds simple. Ah, 3 years post transplant and always that small fear of a relapse lurking around.

I am very glad your husband's doctors are doing their research, with all those tests and a good regimen. I do hope he stays positive. Just take it one day at a time, and enjoy what you have per day. Please send him my wishes. I have a prayer group after morning mass, you are in our prayers. And take care of yourself too.
Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in June 2017. Some GVHD skin, liver, stomach, esophagus.
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