Home         Forums  

Go Back   Marrowforums > Treatments > Transfusions and Iron Overload
Register FAQ Search Today's Posts Mark Forums Read

Transfusions and Iron Overload Blood and platelet transfusions, iron testing and treatments

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Aug 8, 2014, 05:56 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Info about iron overload

Hi All,
Here is an article about iron overload. http://www.bloodjournal.org/content/124/6/873
Kind regards
Birgitta-A
Reply With Quote
  #2  
Old Wed Aug 13, 2014, 06:47 PM
Caregive Caregive is offline
Member
 
Join Date: Nov 2013
Location: USA
Posts: 61
Thank you Birgitta. Seems huband's doctor feels like he is old and expendable. We both have sensed that when we are at the office. But husband continues to be active and is making plans for next year's garden already. I may request another trip to Seattle to be seen again and find out if there are other options we haven't looked at yet. He gets 2 units of red cells about every three weeks and has been taken off Exjade due to other blood test results. He tolerated the Exjade as far as we know, not knowing what it was doing to his insides. No perfect solution but I read here for more ideas. Not eating iron-rich foods has to occur but that doesn't do much I don't think in the long run.
__________________
Caregiver for husband
Reply With Quote
  #3  
Old Thu Aug 14, 2014, 05:11 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Iron overload

Hi caregiver,
As far as I remember your husband has low risk MDS - then he should get some kind of chelation when he is receiving txs. What is his ferritin level? As you know many treatment centers start chelation at 1000.

I understand that your husband has a port-a-cath. Then he could get Desferal iv during 4 days from a "home pump" in connection with txs. Desferal has been used almost 50 years as a chelation drug. It is not as toxic as Exjade or the other oral chelating drugs. I have got more that 70 Desferal infusions since 2006 without adverse effects.
Kind regards
Birgitta-A
Reply With Quote
  #4  
Old Thu Aug 14, 2014, 03:08 PM
Caregive Caregive is offline
Member
 
Join Date: Nov 2013
Location: USA
Posts: 61
Birgitta, that's good info. Due to other blood readings unrelated to MDS he is to not have chelation. It's dangerous. Yes, his MDS is low risk but he has so many other ailments. But I think it's time for us to ask to be refered to Seattle again for another look at the situation. He didn't have a problem taking Exjade but the oncologist took him off it. We're waiting for another appt. And the latest ferritin test I saw was 2600, not 3600 which I may have written somewhere on this site. Still too high. A worry for sure.
__________________
Caregiver for husband
Reply With Quote
  #5  
Old Fri Aug 15, 2014, 07:22 AM
Birgitta-A Birgitta-A is offline
Member
 
Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
iron overload

Hi caregiver,
As you perhaps have understood myany MDS doctors really don't believe that chelation is so important for MDS patients. It is different with patients who start txs when they are children. Then iron is toxic for example for the heart. We who start txs late in life manage iron overload much better.
Kind regards
Birgitta-A
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Info about iron overload Birgitta-A Transfusions and Iron Overload 0 Fri Nov 2, 2012 08:44 AM
ASH Japanese Study on Iron Overload mesuring after allogeneic HSCT akita Transfusions and Iron Overload 0 Thu Dec 16, 2010 01:20 PM
ASH 2010 Highly Transfused MDS Patients Often Have Cardiac Iron Overload akita Transfusions and Iron Overload 0 Wed Dec 15, 2010 05:21 PM
ASH 2010 Iron Overload results in deficient Hematopoiesis akita Transfusions and Iron Overload 0 Sat Dec 11, 2010 04:43 PM
Iron Overload, Liver and Heart Function Francine S Transfusions and Iron Overload 7 Mon Jun 1, 2009 01:01 PM


All times are GMT -4. The time now is 12:21 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org