A free one-day patient conference will be held in Rockville, MD (40 minutes up the Red Line from Washington DC) on Saturday, March 19, 2016. The conference, hosted by the
Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of
seven one-day patient conferences in 2016.
The conference is for AA, MDS, and PNH patients and their families, as well as medical professionals who care for these patients.
The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions on transplants, clinical trials, health insurance, and decision-making, as well as professionally-facilitated support sessions with your peers.
Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight. There will a Friday Night Social the evening before the conference.
Conference Program
Come hear the latest information about diagnosis, treatment, and medical research from leading experts, including these physicians:
- Dr. Rafael Bejar, University of California San Diego
- Dr. Calado Rodrigo, University of São Paulo (Ribeirão Preto, Brazil)
- Dr. Phil Scheinberg, Hospital São Jose (São Paulo, Brazil)
- Dr. Neal Young, National Institutes of Health
Patients and family members will also be able to
- meet medical experts face-to-face
- hear about the latest treatments and medical research
- learn skills for managing life with a bone marrow failure disease
- have your questions answered
- learn how to be your own advocate for the best care
- get to know other patients and family members like yourselves
- attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.
AA&MDSIF Patient and Family Conference: Living with Aplastic Anemia, MDS, or PNH
When:
Saturday, March 19, 2016, 8:30am to 4:30pm
Check-in begins at 7:30am.
Where:
Hilton Washington DC/Rockville Hotel (Google map)
1750 Rockville Pike, Rockville, MD 20852
301-468-1100 (main)
Hotel reservations:Discounted hotel rates are available through Thursday February 25, 2016.
Phone: 888-370-0980 (mention "AA&MDSIF Patient Family Conference")
Online Hotel Reservations
Hotel parking is free during the day, $15 overnight.
See other hotel information on the AA&MDSIF event page.
Conference registration:
Use the online Conference Registration Form to register for the conference.
No registration deadline has been set.
For more information see the AA&MDSIF event page.
If you plan to attend this conference, post in this thread to let other attendees know to look for you!
After the conference, let us know what you thought of the event.
Wed Jan 20, 2016, 10:15 PM
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