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  #1  
Old Tue Mar 12, 2013, 09:59 PM
triumphe64 triumphe64 is offline
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Location: Dallas, Texas
Posts: 455
Dallas/Fort Worth Communities of Hope

I have been trying to start a Community of Hope in the Dallas area.
I recently met someone from Ft. Worth interested in participating in one.

If anyone is interested in participating in either place, or a combined group, please let me know.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #2  
Old Wed Mar 13, 2013, 03:01 PM
Neil Cuadra Neil Cuadra is offline
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Location: Los Angeles, California
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You might check if any of the Texas forum members who posted here or here or here or here are still interested.

Many forum members allow you to email them via Marrowforums. You see the link for this on their forum profile page, which you get to by clicking on their name. Emailing is a good approach if they haven't posted in a while. Otherwise you can try sending them a Private Message (also from their profile page), which they'll see when they next visit or log in.
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  #3  
Old Wed Mar 13, 2013, 03:41 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
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Thank you, Neil.
I will do that.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #4  
Old Fri Jul 26, 2013, 11:48 AM
Keri Anne Keri Anne is offline
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Join Date: Feb 2013
Location: Ft. Worth, TX
Posts: 13
I would like to participate

My contact is keri@emzkreations.com.
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Keri Anne, widow of Tom W. age 63; dx Myelodysplastic Syndrome 10/26/11; Rec. Aloe at Audie Murphy SA, TX 5/12; passed 10/23/12;.
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  #5  
Old Fri Jul 26, 2013, 02:19 PM
triumphe64 triumphe64 is offline
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Location: Dallas, Texas
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Keri,
I wrote you an email.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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  #6  
Old Fri Jul 26, 2013, 02:29 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Neil,
I had contacted all of them but got no reply.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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