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Old Tue Jun 30, 2009, 01:14 PM
Marrowforums Marrowforums is offline
Join Date: Jul 2006
Posts: 891
Visit Us at the AA&MDSIF 2009 Patient & Family Conference

A special informational session featuring Marrowforums will be held as part of the Online Learning Lab during the AA&MDSIF 2009 Patient & Family Conference. Site administrators, Neil and Ruth Cuadra, will be on hand to help you get started or learn more about how Marrowforums can help you in dealing with bone marrow failure diseases.

The Online Learning Lab, which will be open Friday, July 10 from 2-5pm and Saturday, July 11 from 11am-3:45pm, consists of series of short sessions on using the Internet to find information and connect with other patients and their families. Marrowforums will be featured during these times:
  • Friday from 5pm-6pm
  • Saturday from 1:30pm-2:30pm
We hope that Marrowforums members who are at the Conference will stop by to say hello. New members are always welcome, so if you meet someone who doesn't yet know about Marrowforums, bring them along to the Online Learning Lab.

Those attending the conference are welcome to post in our Who's going to the 2009 Patient Conference? thread so we'll know who to look for!

The full program for the conference can be viewed on the AA&MDSIF Conference Agenda page.

Conference dates:
Friday, July 10, 2009 (1pm-9pm): Pre-conference sessions, Online Learning Lab and reception
Saturday, July 11, 2009 (8am-8pm): Patient & Family Conference
Sunday July 12, 2009 (8am-2:30pm): Patient & Family Conference
You can register online or by calling the Foundation at (301) 279-7202, option "3".
Indianapolis Marriott Downtown
350 West Maryland Street
Indianapolis, Indiana 46225
Hotel Direct: (317) 822-3500
Reservations: (877) 640-7666
Phone Reservation Group Code: "AA&MDS Conference"
Internet Reservation Group Code: "AAMAAMA"
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Old Tue Jun 30, 2009, 10:27 PM
Hawaii Bill Hawaii Bill is offline
Join Date: Jun 2008
Location: Waikele Hawaii
Posts: 100

I just wanted to add my recommendation of this conference. I went last year and learned a great deal about my aplastic anemia. The presentations by leaders in the field gave me a lot of hope.
Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
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