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Bone Marrow Failure Causes, treatment approaches, terminology, related diseases

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Old Thu Dec 17, 2009, 07:47 PM
Strength Strength is offline
Join Date: Nov 2009
Location: Canada
Posts: 2
neck and back pain

Any one else have constant low back and neck pain? do you know if this is related to leukopenia and raeb-1.
Strength,dx'd Nov/09 MDS type raeb-1,severe leukopenia,no tx.
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Old Thu Dec 17, 2009, 08:57 PM
Chirley Chirley is offline
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Almost constantly. I've had an MRI of my neck and lower back, arthritis everywhere with nerve impingement on many levels. I figured that it must be the curse of getting older.

Having said that, every year older that I get the happier I am within myself. Wouldn't be young again for quids.

Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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Old Sun Apr 4, 2010, 08:57 AM
lotusbud lotusbud is offline
Join Date: Apr 2010
Posts: 53

intermittently the neck pain is quite disabling; like a migraine that lasts for a few days. I got some painkillers, but they are narcotics, so.. work is kind of tough. I was wondering also if leukopenia or all the other problems really can effect that kind of stuff?? I also had MRI of the neck and have been to physical therapy, so that they refuse to treat me any longer; the problem only returns.
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Old Mon Jul 5, 2010, 01:59 PM
m mindas m mindas is offline
Join Date: Jan 2010
Location: Toms River, New Jersey
Posts: 18
Maybe it is the meds you are on. check the side effects.
Marian , Dx 12/25/09 w/ hypoplastic myelodysplasia and 10% PNH clone. Dx changed to SAA in 1/10, treated w/ unsuccessful horse ATG and cyclosporine. Dx of unclassified MDS or acquired bone marrow failure, PNH clone 39% (after ATG). Due for BMT in Sept or Oct 2010.
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