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AA Aplastic anemia

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  #1  
Old Tue Aug 30, 2011, 04:36 AM
kathrnclark kathrnclark is offline
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My Blog - Shameless Self Promotion

Hi Everyone! I would like to take this opportunity to direct anyone who might be interested to my blog (www.aplasticanemiablog.com). I am a writer and have been attempting to create a realistic, but positive account of my experience with Aplastic Anemia. My goal is to help anyone who is affected by bone marrow failure diseases find a voice in the dark and a friend who understands the highs and lows of this Dis-Ease. Thank you!!
<End Shameless Self Promotion>
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Katherine - Aplastic Anemia Warrior
www.aplasticanemiablog.com
30 - Severe Aplastic Anemia - Diagnosed January 2011
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  #2  
Old Tue Aug 30, 2011, 12:07 PM
Neil Cuadra Neil Cuadra is offline
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You and your cat Basil write well. I hope you'll be able to keep up your journal and participate here during your transplant, and that your treatment will have a positive outcome to match your positive outlook.

Your selection of photos and captions is great.
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  #3  
Old Tue Aug 30, 2011, 12:32 PM
cheri cheri is offline
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Please tell me you get paid for writing.......
If you don't, you should!

Great Blog! Almost makes me want AA instead of MDS....but based on today's info, if I keep taking the Bactrim my Dr prescribed, I just might!
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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  #4  
Old Tue Aug 30, 2011, 02:53 PM
kathrnclark kathrnclark is offline
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RE: My Blog

Thank you so much for your comments! I really appreciate it!
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Katherine - Aplastic Anemia Warrior
www.aplasticanemiablog.com
30 - Severe Aplastic Anemia - Diagnosed January 2011
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  #5  
Old Tue Aug 30, 2011, 10:13 PM
mausmish mausmish is offline
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Hi Katherine,

Really enjoyed your blog - thanks for the link. You're a terrific writer, as is Basil. I've added a link from my blog to yours.

Best of luck with your transplant!

Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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  #6  
Old Tue Aug 30, 2011, 10:25 PM
kathrnclark kathrnclark is offline
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RE: My Blog - Shameless Self Promotion

@mausmish - Thanks for the compliment and the link! I will link you back!
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Katherine - Aplastic Anemia Warrior
www.aplasticanemiablog.com
30 - Severe Aplastic Anemia - Diagnosed January 2011
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  #7  
Old Tue Sep 6, 2011, 08:29 PM
kathrnclark kathrnclark is offline
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RE: My Blog - Shameless Self Promotion

I have just updated with a new post in which I discuss my decision to cut off all my hair in preparation for my chemo and BMT. Thanks!

www.aplasticanemiablog.com
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Katherine - Aplastic Anemia Warrior
www.aplasticanemiablog.com
30 - Severe Aplastic Anemia - Diagnosed January 2011
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  #8  
Old Fri Sep 9, 2011, 12:58 AM
cathybee1 cathybee1 is offline
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You really express so well how important it is to keep some control. I really really love your new look. I hope it grows (okay, a little pun intended ) on you.
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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  #9  
Old Thu Sep 15, 2011, 05:18 PM
kathrnclark kathrnclark is offline
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RE: My Blog - Shameless Self Promotion

Last post before I go in for my BMT! Here we go!!!
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Katherine - Aplastic Anemia Warrior
www.aplasticanemiablog.com
30 - Severe Aplastic Anemia - Diagnosed January 2011
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  #10  
Old Thu Sep 15, 2011, 10:19 PM
Neil Cuadra Neil Cuadra is offline
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Best of luck, Katherine. We're on your team.
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  #11  
Old Tue Sep 20, 2011, 11:12 PM
kathrnclark kathrnclark is offline
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RE: My Blog - Shameless Self Promotion

Nearly done with my pre-treatment regimen. Can't wait for it to be over. More details in my blog.
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www.aplasticanemiablog.com
30 - Severe Aplastic Anemia - Diagnosed January 2011
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