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  #1  
Old Fri Aug 24, 2007, 04:30 PM
Ger Ger is offline
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Join Date: Aug 2007
Location: Oregon
Posts: 15
New to MDS and forum.

Hello, I am new to MDS as well as new in learning to use a forum. About all I've learned about MDS I have found on the internet.
In June this year my husband age 73 was told he has mds. Had BMB that showed high grade RAEB. He has low white count and low platelets. He had one series of Dacogen therapy and for 2 wks was improving then all of a sudden he
developed pneumonia that came on so quickly I couldn't even get him to the to the car to take him to the hosp. before he was unable to help himself in any way or even understand what I needed him to do to help me get him there.
He spent a week in the hosp being treated with antibiotics and given platelets. Dr has said he will not do any more Dacogen. We see his Dr next week. So for right now I am just trying to learn as much as I can.

Geri
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Husband diagnosed with MDS June 07, I'm trying to learn quickly.
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  #2  
Old Fri Aug 24, 2007, 10:30 PM
Zoe's Life Zoe's Life is offline
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Join Date: May 2007
Location: Logan, Ohio
Posts: 127
Geri,

Welcome to the group. You will find many helpful and kind people here. Feel free to ask any specific questions.

Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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  #3  
Old Mon Aug 27, 2007, 06:01 PM
Ger Ger is offline
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Join Date: Aug 2007
Location: Oregon
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Thanks Zoe, I'm glad I found this site, I'm sure I have lots of questions as time goes by.

Geri
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Husband diagnosed with MDS June 07, I'm trying to learn quickly.
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  #4  
Old Tue Sep 25, 2007, 10:25 PM
lizzie32765 lizzie32765 is offline
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Join Date: Sep 2007
Posts: 5
Geri,
I am new also, My Mother was diagnosed at the age of 74 with MDS. I learned so much from her and the doctors. It made me wish I had continued with nursing school. I know I am not the one with MDS but my Mother was my best friend and I was there with her through it all. Stay strong and stay positive. I read alot also, although sometimes I wish I hadn't, especially if it was a stressful period. I hope you have friends and family to talk to because throughout the treatments it's helpful to talk and get your feelings out.
God bless you and your husband.
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Beth, daughter of Mary age 75; diagnosed MDS Oct. 2005. Just recently passed away; 21 months after being diagnosed and treated. She was truly an amazing woman who never gave up and never questioned why.
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