Home         Forums  

Go Back   Marrowforums > Practical Issues > Questions and Answers
Register FAQ Search Today's Posts Mark Forums Read

Questions and Answers Not sure where to post a question? Post it here.

Reply
 
Thread Tools Search this Thread
  #1  
Old Fri Apr 25, 2014, 03:40 PM
Caregive Caregive is offline
Member
 
Join Date: Nov 2013
Location: USA
Posts: 61
AAMDS on Charity Navigator

I looked this organization up on Charity Navigator and it is highly rated so I made a donation. You can check on it too.

http://www.charitynavigator.org/
__________________
Caregiver for husband
Reply With Quote
  #2  
Old Fri Apr 25, 2014, 04:55 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Caregive,

There is a great group of people that work there. They provide great hands on support if you need it as well as a very informative website and conferences. There is also a peer support network and community of hope groups that they encourage. I suggest you call them, if you haven't done so already.

Your money is well spent.

www.aamds.org
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
  #3  
Old Sat Apr 26, 2014, 02:16 AM
Caregive Caregive is offline
Member
 
Join Date: Nov 2013
Location: USA
Posts: 61
I wanted people to know about their rating on Charity Navigator. We got something in the mail today on a charity I had never heard of. While I was researching that, I decided to check this organization here. Came out 4star. And yes, I know about aamds, that's how I got to the forums. Will be attending a converence in June which has MDS on its list of topics. Thanks.
__________________
Caregiver for husband
Reply With Quote
  #4  
Old Sat Apr 26, 2014, 06:09 PM
triumphe64 triumphe64 is offline
Member
 
Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by Caregive View Post
I wanted people to know about their rating on Charity Navigator. We got something in the mail today on a charity I had never heard of. While I was researching that, I decided to check this organization here. Came out 4star. And yes, I know about aamds, that's how I got to the forums. Will be attending a converence in June which has MDS on its list of topics. Thanks.
Good. I think I will be at the one in Detroit in July. Thanks for the heads up on Charity Navigator.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Greater Boston AAMDS Community of Hope Melissa D Support Groups and Communities of Hope 5 Mon Feb 8, 2016 12:08 AM
I'm an AAMDS "Story of Hope"! squirrellypoo News and Events 4 Mon Dec 17, 2012 04:00 PM
Help Promote AAMDS Awareness at the Racetrack Jbsx19 News and Events 7 Thu Sep 11, 2008 11:56 AM
AAMDS Patient Conference in DC Hawaii Bill News and Events 16 Tue Jul 22, 2008 08:58 AM
Raising money for AAMDS Wendy Beltrami AA 0 Wed Jan 3, 2007 02:40 PM


All times are GMT -4. The time now is 10:34 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org