Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Mar 24, 2010, 02:14 PM
carolyn carolyn is offline
Member
 
Join Date: Jul 2009
Location: London
Posts: 20
Menatetrone vitamin shown to be beneficial to MDS patients?

Hi All,

I came across this new info online today, i'm not sure how accurate it is.

http://www.wellsphere.com/healthy-ea...utrophil+Count

If anyone knows anything about menatetrone being beneficial to MDS patients please let me know!

Thanks,

Carolyn
Reply With Quote
  #2  
Old Wed Mar 24, 2010, 04:50 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,556
Here is a direct link to the report's abstract.

The sample size in their study was small, which is often the case for MDS studies, but it's promising news, especially since menatetrenone had multiple beneficial effects among these patients (on hemoglobin, platelets, and ANC) and no serious side effects.

Menatetrenone and menaquinone are names for one type of vitamin K, and vitamin K (found in green leafy vegetables) is known to have an effect on blood clotting. It shouldn't be taken with medications that also affect blood clotting, such as warfarin (coumadin). Vitamin K is harmless for most people but anyone receiving other treatments should ask their doctor about vitamins and supplements that they are interested in or that they are already taking.
Reply With Quote
  #3  
Old Wed Mar 24, 2010, 04:55 PM
Gene_In_Va Gene_In_Va is offline
Member
 
Join Date: Oct 2009
Location: Central Virginia
Posts: 18
Question Vitamin K2 and MDS apoptosis

Carolyn,

I'd be cautious with that. All the references I can find for K2 and MDS are dated between 1998 and 2000. Nothing newer. Seems to me if it was really beneficial, there would be new or continued abstracts about it.

Also I was at the AA & MDS International Foundation Symposium in Bestheda 2 weeks ago and none of the reseachers there mentioned Vitamin K2

Best to you,

Gene In Virginia
__________________
Male age 64 Dx:RA Del(5q-) Intermediate -1. Dx'd 09/2009 Taking Revlimid 10 mg/day since 11/2009 - now tx independent and normal counts. 2nd BMB results from 5/15/2010: 6 of the 20 specimens now show normal cytogenics.
Reply With Quote
  #4  
Old Thu May 27, 2010, 05:04 PM
jaygard jaygard is offline
Member
 
Join Date: Jul 2008
Location: memphis tn
Posts: 5
Vitamin K

http://www.nature.com/leu/journal/v1.../2401790a.html

http://www.touchoncology.com/article...ular-carcinoma

http://www.vitaguide.org/vitamin-k.html
Reply With Quote
  #5  
Old Thu May 27, 2010, 09:47 PM
Chirley Chirley is offline
Member
 
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi, I didn't read the links but just thought I'd throw in something that my doctor told me. When he was giving me my treatment options, I asked him what I could do to help myself. He told me to eat lots of green leafy vegetables because they were known to be beneficial for MDS. Maybe he meant the Vit K.
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
Reply With Quote
  #6  
Old Fri May 28, 2010, 01:16 AM
lotusbud lotusbud is offline
Member
 
Join Date: Apr 2010
Posts: 53
Would think green leafy vegetables are good for everybody. How many leaves can one eat in a day, and in a week? I mean, it is probably harder to get an overload from the veggies than it would be from pure vitamin pills. Besides, the roughage and so forth should be good too!
But me too, years past when I had MCV around 106 after bronchitis and no clue what was going on, first thing they told me was to eat green leafy veggies. Also these veggies are supposed to have folate, methinks, which is also good...
Reply With Quote
  #7  
Old Wed Jun 2, 2010, 06:44 AM
JyotikaK JyotikaK is offline
Member
 
Join Date: Mar 2010
Location: New Delhi, India
Posts: 8
VK2 Therapy

I read the links posted in this thread and did some more research on the net. Sounded good, so asked my Dad's doctor if she has heard about the Vitamin K2 therapy for MDS Patients.

She is saying she has heard about it, mainly being used in Japan and it may be worth trying. Considering it is a vitamin, it should not be harmful atleast, right?

So she is going to prescribe it for dad. Keeping figures crossed.

Still praying for our miracle.

Take Care.

Jyotika
___________________

Daughter of Ramesh, RAEB I, Dx 2009 July, on supportive care with RBC transfusions 3-4 weeks and platelet transfusion as and when required.
Reply With Quote
  #8  
Old Wed Jun 2, 2010, 12:50 PM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,412
Do you know what the dosage will be? And did she also check his Vitamin D levels? Looks like from one of the articles, Vitamin D was used with it. John takes 5000 ius of vitamin D daily. We found his D levels to be below normal. He also takes Vitamin K2. We were not aware of the Vitamin K2 connection to BM cancers though.

That's great to hear you doctor's openness to trying this approach. I hope it helps.

Marlene
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Vitamin K-2 lfeinsmith MDS 42 Tue Nov 29, 2016 08:04 PM
Smoking and bone marrow failure lacanada1 Bone Marrow Failure 3 Tue Jan 31, 2012 02:12 PM


All times are GMT -4. The time now is 06:38 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org