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Old Tue Jan 22, 2013, 01:58 AM
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One-day Patient Conference in Phoenix, AZ, April 6, 2013

A free one-day patient conference will be held in Phoenix, AZ on Saturday, April 6, 2013. The conference, hosted by the Aplastic Anemia & MDS International Foundation (AA&MDSIF), is one of six one-day patient conferences in 2013.

This will be a multi-track conference for AA, MDS, and PNH patients and their families. Those who live in the West should plan to attend this conference, the conference 2 weeks later in Houston, Texas, or the July conference in San Francisco, California.

The conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.

Conference attendance is free. Breakfast and lunch are included. Discounted hotel rates are available to those who want to stay overnight.

Conference Program

Come hear about the latest information about diagnosis, treatment (including transplants), and medical research from leading experts, including:
  • Dr. Laurence Boxer, University of Michigan C.S. Mott Children's Hospital
  • Dr. Bogdan Dumitriu, National Institutes of Health
  • Dr. Jack Goldberg, Penn Presbyterian Medical Center
  • Dr. Carolyn Matthews, Baylor University Medical Center
  • Dr. Laura Michaelis, Loyola University Medical Center
  • Dr. Michael Pulsipher, University of Utah Pediatric Transplant Program
  • Dr. Bart Scott, Fred Hutchinson Cancer Research Center
Patients and family members will also be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
A special lunch program will let conference attendees meet and talk, with an emphasis on ways to stand up for your health.

Living with Aplastic Anemia, MDS or PNH

When:
Saturday, April 6, 2013, from 8:30am to 5:00pm
Check-in begins at 7:30am.
Where:
Hyatt Regency Phoenix (Google map)
122 North Second Street, Phoenix, AZ 85004
602-252-1234 (main), 888-421-1442 (toll-free reservation line)

Discounted hotel rates are available if you make reservations by Thursday March 14, 2013.
Hotel parking is available but is not free.
See other hotel information on the AA&MDSIF event page.
Registration:
Use the online registration form to register for the conference.
The registration deadline is Wednesday, March 27, 2013.

For more information see the AA&MDSIF event page.

If you plan to attend this conference, post in this thread to let other attendees know to look for you!

After the conference, let us know what you thought of the event.
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