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AA Aplastic anemia

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Old Wed Feb 3, 2016, 11:06 AM
Ashleigh K. Ashleigh K. is offline
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Location: Birmingham UK
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Red face Awaiting 2nd Round of ATG

Hi again!!
Ok so, since my last appointment (26/01/16) I have found out that I only have Aplastic Anaemia and no signs of MDS, which is good!
Doc has opted for a 2nd round of ATG, I was due in hospital on Monday but the YPU doesnt have any beds ugh

Currently sporting a PICC Line, the procedure went well but I bled a lot (damn platelets x.x) Its a little bit of a nuisance and is making me concious of every twinge of pain I get in case something is wrong with it >.>

Should hopefully be admitted today maybe, even if it is late in the evening. really hope so anyway
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Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region.
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Old Wed Feb 3, 2016, 04:34 PM
curlygirl curlygirl is offline
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Good luck!
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Old Sun Feb 7, 2016, 12:11 PM
edithr edithr is offline
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It's both funny and sad at the same time to be able to say, "yay it''s only Aplastic Anemia", but it really is a celebration.

Did they use horse the first time, and will they use horse again, or will they use rabbit? I thought there was some study about a repeat treatment and which was better.

Good luck to you!
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Edith, mom to Eric, dx 2/11 at age 15 with SAA, began ATG/CsA 3/11, switched to Tacrolimis 8/11, off all meds 9/11 and is now considered to have bone marrow failure not otherwise specified.
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Old Mon Feb 8, 2016, 04:19 AM
Ashleigh K. Ashleigh K. is offline
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Quote:
Originally Posted by edithr View Post
It's both funny and sad at the same time to be able to say, "yay it''s only Aplastic Anemia", but it really is a celebration.

Did they use horse the first time, and will they use horse again, or will they use rabbit? I thought there was some study about a repeat treatment and which was better.

Good luck to you!
Hah, thank you
I had rabbit the first time round so they are trying horse this time
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Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region.
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