The National Organization for Rare Disorders (NORD) has added a State-by-State Insurance Information
section to their website, covering the U.S. insurance marketplaces.
For each U.S. state and territory, NORD provides state contact information and links to insurance exchange profiles, health benefit lists, online forms, consumer assistance organizations, and other state insurance resources.
The NORD website can steer you to resources that can help you work with the Health Insurance Marketplace
established by the Affordable Care Act