Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > AA
Register FAQ Search Today's Posts Mark Forums Read

AA Aplastic anemia

Reply
 
Thread Tools Search this Thread
  #1  
Old Wed Apr 20, 2016, 03:13 AM
Ashleigh K. Ashleigh K. is offline
Member
 
Join Date: Jan 2016
Location: Birmingham UK
Posts: 21
Unhappy Rising counts but still have symptoms

Hi all
Things are going well
As of yesterday (19/04/2016) my blood count was:
HgB: 11.9
Platelets: 234
WBC: 4.80

While this is all good, i am starting to have trouble with fatigue again
I find it very difficult to get up stairs and cannot walk for very lomg distances without getting severely tired
I also have trouble getting up in the mornings which has never really been a problem before
Unfortunately i couldn't tell the doctor (it wasn't my normal consultant anyway) any of this because my PICC Line became blocked and they we're trying to sort that out >3<

I just find it strange that my blood counts are rising but I'm starting to feel rubbish again
__________________
Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region.
Reply With Quote
  #2  
Old Wed Apr 20, 2016, 10:20 AM
Marlene Marlene is offline
Member
 
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,412
Hi Ashleigh,

Glad your counts are rising. They look pretty good. Hope you can get in to see your doctor soon to discuss this. Since you're on cyclo, have they checked your magnesium levels lately?

Marlene
__________________
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
Reply With Quote
  #3  
Old Wed Apr 20, 2016, 03:41 PM
Ashleigh K. Ashleigh K. is offline
Member
 
Join Date: Jan 2016
Location: Birmingham UK
Posts: 21
Quote:
Originally Posted by Marlene View Post
Hi Ashleigh,

Glad your counts are rising. They look pretty good. Hope you can get in to see your doctor soon to discuss this. Since you're on cyclo, have they checked your magnesium levels lately?

Marlene
Hi Marlene! My cyclo level is 121 i think which the doctor said was alright but I'm sure my normal consultant said that it had to be between 200-300 so
My magnesium did drop a little bit and I was on magnesium tablets a few weeks ago but my magnesium levels have been okay since so I'm not sure what it could be.
__________________
Diagnosed AA in 2009;treated rabbit ATG+Cyclosporin the same year, taken off Cyclosporin in 2011; Relapsed AA in 2015 and had horse ATG as of 08/02/16. I have copy neutral loss of heterozygosity in chromosome 6p, affecting the HLA region.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Air travel with low counts, any helpful ideas? Meri T. MDS 12 Sun Apr 16, 2017 05:29 PM
New Symptoms Sue&Dave MDS 10 Mon Feb 13, 2017 07:55 PM
Retic counts normalized after ATG and Cyclosporint gina66 Bone Marrow Failure 1 Fri May 29, 2015 07:52 PM
Terrible Blood Counts after Vidaza joesmith MDS 11 Tue Aug 12, 2014 03:34 PM
counts very low after 1st round Vidaza knocksonce MDS 8 Sun Apr 29, 2012 08:45 PM


All times are GMT -4. The time now is 07:25 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org