Home Forums |
#1
|
|||
|
|||
dad
Dad's transfusions stop tomorrow. he is very weak.
|
#2
|
|||
|
|||
Elaine,
We know how hard this past year has been for you and how dedicated to your Dad you've been. You have our best wishes whatever the future brings. |
#3
|
|||
|
|||
thank you so much Neil.
|
#4
|
|||
|
|||
Hello Elaine,
Nothing I say will help but I just wanted you to know I'm thinking of you, your Dad and the rest of your family. Sincerely Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy. FISH reported normal cytogenetics but gene testing showed Xq 8.21 mutation Xq19.36 mutation Xq21.40. mutation 1p36. Mutation 15q11.2 deletion |
#5
|
|||
|
|||
thank you Chirley. it is so scarey right now. I have sat with many dying people and been fine but I am terrified this time.
|
#6
|
|||
|
|||
No words can help. So so sorry. You dad is a fighter for sure.
__________________
Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks. |
#7
|
|||
|
|||
Sending you and your Dad comforting thoughts - so sorry there's nothing to say to make it easier.
__________________
Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com |
#8
|
|||
|
|||
thank you all so much for all the support during this horrible journey.
|
#9
|
|||
|
|||
Dad is still with me. not sure how much longer. tuesday will be 2 weeks since his last plts though so I don't think it will be much longer. he is very weak and his mind is just not what it needs to be. please keep us in your thoughts and prayers.
|
#10
|
|||
|
|||
Thanks for the update. I wish this journey was easier. So glad you're with your dad right now.
__________________
Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks. |
#11
|
|||
|
|||
Not Much to say
Hello Bepop,
Dont have much to say in the scenario, however whatever may be the future , May god be with u and ur father. I have u and ur family in my prayers, God Bless. Regards, Neel
__________________
Father age 64 diagnosed with MDS RAEB-2, with 15%-18% blasts in October 2010. Only had blood and platelet transfusions. Ayurvedic treatment which showed result for arnd 5 months. Started Tahlidomide 100 mg started on 22 nd April 2011. Revolade 50 mg started on 2 nd april 2012. |
Thread Tools | Search this Thread |
|
|
Similar Threads | ||||
Thread | Thread Starter | Forum | Replies | Last Post |
Acute Gvhd My Mom's Story | tamara669 | Tell Your Story | 26 | Sun Feb 7, 2016 01:08 AM |
Dad with AML no longer responding to Vidaza, looking for alternatives. | LJacobs | Tell Your Story | 0 | Thu Feb 28, 2013 12:49 AM |
I need info to help my dad... | Sarah.P | MDS | 4 | Wed Oct 17, 2012 02:17 PM |
Dad diagnosed with MDS (RAEB-1); no treatment as of now | S001 | MDS | 20 | Wed Aug 25, 2010 08:44 AM |
My Dad and MDS | Marixyz | MDS | 19 | Fri Jun 5, 2009 07:45 PM |