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Transplants Bone marrow and stem cell transplantation

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  #1  
Old Tue Apr 2, 2019, 09:40 AM
shadowii shadowii is offline
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Shoulder pain

My father just had a haplocord transplant a week ago for mds.

He has been doing very well but for the last three days he's been having shoulder pain.

Tests have shown no infection, no clot and no bone problems.
Now he claims the medication Made it worse.

Does anyone have any idea whats happening with him?
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  #2  
Old Thu Apr 4, 2019, 10:58 AM
shadowii shadowii is offline
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ok after many tests, they know its not clot, bone or tissue damage or any sort of infection (they did mri, sonogram, etc)
they think its related to the line they put in him
has anyone recalled a situation like this (they are considering giving him oxycontin)

Last edited by shadowii : Thu Apr 4, 2019 at 11:17 AM.
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  #3  
Old Fri Apr 5, 2019, 02:13 AM
Hopeful Hopeful is offline
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Quote:
Originally Posted by shadowii View Post
ok after many tests, they know its not clot, bone or tissue damage or any sort of infection (they did mri, sonogram, etc)
they think its related to the line they put in him
has anyone recalled a situation like this (they are considering giving him oxycontin)

I would be really cautious with starting him on oxy, given how addictive it can be. If they suspect his pain may be nerve related, I would talk to his doctors about trying Botox injections to treat it. I am not an expert but have heard of people that had success with this.
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52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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Old Fri Apr 5, 2019, 11:19 AM
shadowii shadowii is offline
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Originally Posted by Hopeful View Post
I would be really cautious with starting him on oxy, given how addictive it can be. If they suspect his pain may be nerve related, I would talk to his doctors about trying Botox injections to treat it. I am not an expert but have heard of people that had success with this.
Whoops a little late to tell me that now, heheh, he had a good night sleep so im sure he's happy with it (they gave him sleep meds too)

Also I've learned the pain centers in his shoulder but can spread to back and arms when it gets bad.

Anyway he's day 9 post transplant so as im sure people can imagine he's pretty wrecked regardless, were just waiting impatiantly for signs engraftment is starting
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  #5  
Old Fri Apr 5, 2019, 01:38 PM
Marlene Marlene is offline
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If it is the line and continues to cause pain, you may want to discuss replacing and relocating it. It shouldn't cause that much pain.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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