Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Jul 17, 2017, 07:45 PM
sheribaby sheribaby is offline
Member
 
Join Date: Jul 2017
Location: Hagerstown, MD
Posts: 3
MDS

Hi I am new to this diagnosis. The Dr gave me literature on MDS but can't be sure till biopsy of the marrow. I am 64 and am not ready for this. I can see I need to learn a lot about blood test. I am not sure I am willing to put myself through the bone marrow test. I am a big baby. I use to work in a major chemical plant for herbicides so I can very well believe what the blood test are telling my Dr. Is there anyone out there who hasn't had the bone marrow test? I just wanted to reach out. I just lost my husband 3 years ago and I am so sorry to be putting my kids through this. Not good with words. Thanks for listening.
Reply With Quote
  #2  
Old Tue Jul 18, 2017, 11:49 AM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 769
Hi sheribaby,

You can't make an MDS diagnosis without a bone marrow biopsy. So, you will have to do it. It isn't that bad and is over quick. You can ask for sedation if you are really scared.

Many things can mimic MDS, like a vitamin or mineral deficiency. So it is important that your doctor runs a bunch of other blood tests to rule these out as well.

If you do have MDS, the results of the bone marrow biopsy will help your doctor define your treatment regimen, which could ultimately extend your life and the quality of that life.

Now's the time to be strong!
__________________
58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote
  #3  
Old Wed Jul 19, 2017, 08:35 AM
sheribaby sheribaby is offline
Member
 
Join Date: Jul 2017
Location: Hagerstown, MD
Posts: 3
OK thanks will put on the big girl pants and get it done.
Reply With Quote
  #4  
Old Wed Jul 19, 2017, 06:24 PM
Shazza Shazza is offline
Member
 
Join Date: Jul 2013
Location: United Kingdom
Posts: 22
Smile

Ha ha good girl Keep us posted.
__________________
Neutrophils fluctuating between 0.8 & 1.7 since 2000.
Hypoplastic bone marrow (10-15% cellularity).
No cytogenetic abnormalities.
Reply With Quote
  #5  
Old Thu Jul 20, 2017, 05:56 PM
majorindy majorindy is offline
Member
 
Join Date: Jul 2017
Location: Indianapolis
Posts: 8
Bone Marrow Biopsy

I had one done two months ago. The nurse described what I would feel and she was correct. Initial quick needle inseration that felt like a bee sting. Pain Went away in about 10 seconds. After that I felt nothing. I was awake through the entire procedure which took about 20 minutes. Piece of cake - I'm 69 years old.
Reply With Quote
  #6  
Old Sat Jul 22, 2017, 10:13 PM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Sheribaby - it's the only way you will truly know what's going on in your marrow and mostly it's quite tolerable. Knowledge is power!
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
MDS - VA assigns diagnostic code 7725 Tommy Daniels MDS 4 Sun Jan 22, 2017 04:51 PM
New Tool: MDS Classification Marrowforums Site Announcements 7 Tue Jan 4, 2011 06:12 AM
Battle with MDS - A successful story informer Alternative Treatments 4 Sat May 22, 2010 09:26 AM


All times are GMT -4. The time now is 03:18 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org