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#1
Sun Mar 19, 2017, 11:36 PM
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Short Telomeres and MAA
I am looking for information about telomeres and MAA. I had my telomeres tested in January and the doctor reported to me that the telomere lengths were normal in one subset of white blood cells, low in two subsets, and very low in two subsets. One subset could not be tested due to insufficient cells of that type. He wants a follow-up discussion which I am planning to do in the coming weeks/months. I would be very interested to hear about others who have AA and short telomeres. Any advice on what questions to ask when I go up to Dana Farber?
Thank you 
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Kathie - 54 yr old mother of 4, pancytopenia since 11/2014, moderate AA 8/2016, small PNH clone (now increasing), monitor bloodwork every three months 
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#2
Mon Mar 20, 2017, 10:35 AM
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Search for the thread on this forum "Talking Telomeres by Greg H. He was very helpful and had a great interest (as do I) in the significance of telomeres.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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