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#2
Thu Dec 17, 2009, 07:57 PM
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Almost constantly. I've had an MRI of my neck and lower back, arthritis everywhere with nerve impingement on many levels. I figured that it must be the curse of getting older.
Having said that, every year older that I get the happier I am within myself. Wouldn't be young again for quids. Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy. FISH reported normal cytogenetics but gene testing showed Xq 8.21 mutation Xq19.36 mutation Xq21.40. mutation 1p36. Mutation 15q11.2 deletion 
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#3
Sun Apr 4, 2010, 07:57 AM
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neckpain
intermittently the neck pain is quite disabling; like a migraine that lasts for a few days. I got some painkillers, but they are narcotics, so.. work is kind of tough. I was wondering also if leukopenia or all the other problems really can effect that kind of stuff?? I also had MRI of the neck and have been to physical therapy, so that they refuse to treat me any longer; the problem only returns.
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#4
Mon Jul 5, 2010, 12:59 PM
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Maybe it is the meds you are on. check the side effects.
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Marian , Dx 12/25/09 w/ hypoplastic myelodysplasia and 10% PNH clone. Dx changed to SAA in 1/10, treated w/ unsuccessful horse ATG and cyclosporine. Dx of unclassified MDS or acquired bone marrow failure, PNH clone 39% (after ATG). Due for BMT in Sept or Oct 2010.
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