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Transfusions and Iron Overload Blood and platelet transfusions, iron testing and treatments

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Old Tue Aug 16, 2011, 01:43 AM
Ryan Jay Ryan Jay is offline
Join Date: Aug 2010
Location: Massachusetts
Posts: 106
Rallying after a phlebotomy

Hi everyone,

So things have continues to go well for me exactly one year post ATG!

I have gone from using a chelator to phlebotomies in order to chip away at my iron levels. Fine with me because I HATE desferral!!! 8 hours in the hospital every Friday, my pee looks like it was stained with an orange highlighter and all the other effects...yuck.

Anyway, I've gone from 3,800 SF down to 1,600. However my counts drop after a phlebotomy and tend to stay down for a while.

For example, I was at an all time high in mid July: HGB: 12.4, Plt: 103, WBC: 4.2, ANC: 3,000.

Had a phlebotomy about 2 1/2 weeks ago and today my counts were: HGB: 11.7, Plt: 90, WBC: 3.5, ANC: 2,200.

Does this sound typical? I was expecting my counts to pop back up again.

In any case, those phlebotomies really help knock out that iron by 100+ points a shot.
Ryan Jay: 38-yo, dx SAA: 7/25/10, ATG: 8/10/10. CR with counts still rising. HGB: 13, Plt: 137 WBC 5.1 ANC
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Old Tue Aug 16, 2011, 02:24 AM
Neil Cuadra Neil Cuadra is offline
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,373
Ryan Jay,

I'm glad to hear things are still going well.

I wouldn't worry about counts bouncing back in a couple of weeks as long as they bounce back within a month or two.

It takes me 2 months to get back to normal after a blood donation and I haven't been through what you have!
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Old Tue Aug 16, 2011, 08:42 AM
Marlene Marlene is offline
Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,306
John too had a problem with full phlebotomies. Monthly, 500 ml phlebotomies were too much for his bone marrow. Each month, it would take longer to get back up to his starting HGB to the point he had to stop. He now does every other month and only gets 250 ml removed. His HGB is around 12 and as long as it doesn't drop below 10, they'll remove blood from him.

So it's not unusual for those with BM disorder to take longer to restore red cells. You may have to find your threshold. Maybe it's 500 ml or less every other month.
Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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