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Old Thu Oct 17, 2019, 02:30 PM
MsJeni MsJeni is offline
Join Date: Nov 2017
Location: New York
Posts: 2
Is anyone interested in joining an aplastic anemia support&wellness group in New York

I just relapsed. I am undergoing an atg procedure. I survived the severe stage once. My cells were still below normal. I want to start a vegan juicing regime by doctor Gerson and begin a support group for survivors. My plan is to meet at coffee shops to discuss this and to share a diet plan regime with a collective group of survivors who would like to work collaboratively together to battle this illness. I am aware that coffee shops may have germs and considered starting a walking group.. However, it may be too cold for a walking group now. I was wondering if anyone on this site resides in New York. I presently live in Staten Island. If you are interested in joining a support group where we can share our courage, strength and hope please contact me. I would like to share healthy diets and juicing recipees. My email address is survivor1shop@outlook.com. In the meantime, I will inquire with my church, non profits and educational institutes of NY to see if I can find a space to gather for meetup groups.
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Old Sun Jan 24, 2021, 09:27 PM
Junior48 Junior48 is offline
Join Date: Nov 2020
Location: New York
Posts: 5
Central Jersey AA/MDS/PNH support group

For anyone interested there is a support group in the New Jersey/NY/PA/DEL area that meets virtually once a month.

email cnjaamdspnhsupportgroup@live.com if you are interested in learning more.
JR, sister dx with AA 2010; ATG 2011; PNH clone increase in 2019[60%]; current treatment; blood thinner/Cyclo
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