The Aplastic Anemia and MDS International Foundation
(AAMDSIF) plans to create a new online health community focused on bone marrow failure diseases. Marrowforums
and the PNH Support Group
are helping with the planning, and the future of these forums may depend on the outcome.
To connect with other bone marrow failure disease patients and caregivers, do you prefer a forum site like this one, a Facebook group, a medical reference site, a blogging site, or some other type of health community site? How important is the ability to stay anonymous?
These and other questions are in a new AAMDSIF survey. We ask all patients, caregivers, and other Marrowforums
members to take the survey and state your preferences.
Take the survey