Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Mon Jun 30, 2008, 04:51 PM
Suzanne Suzanne is offline
Member
 
Join Date: Mar 2008
Location: Long Island, NY
Posts: 48
Question

We went to mom's hemotologist today to get results on her BMB. He didn't have all the information in as of yet, was waiting on genetics. At anyrate, her blasts were 5% 3 months ago when she had a BMB and they are now at 8%. If I am correct that would now make her RA, RAEB? My question is once the blasts go up is there anyway to get them back down or is she on the road to something worse? Her hemotologist is sending her to someone else for his opinion on Thursday. I also have an appointment for her to see a MDS doctor of excellent on July 25.
__________________
Mom 69 diagnosed with MDS RA 3/08
TLK-199 started 7/17/08 - no response
Vidaza started 12/15/08 - no response
Dacogen started 01/10 - no response
Bone Marrow Biopsy 10/10 - 13% blasts
Bone Marrow Biopsy 12/22/10 - 45% blasts - AML
I have an angel 1/4/11
Reply With Quote
  #2  
Old Mon Jun 30, 2008, 09:59 PM
Steve Kessler Steve Kessler is offline
Member
 
Join Date: Aug 2006
Location: Bellevue, WA
Posts: 71
Yes, the excess blasts can be reduced!

There are several meds available. Mine went from 11% to 3% recently on Vidaza with Enbrel (a trial). Many others have long periods of success or even remission.
__________________
Steve Kessler,Age 71, Dx 3/2001, Currently AML converted from MDS, 5q-, 11q23, Negative response to Aranesp, Revlimid. Partial response to Vidaza in the past. On a study using ON1910.NA, counts too low to go to Stanford on schedule.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
how do i post a question for all MDS groups? sundco Site Comments 3 Sat Mar 31, 2018 11:16 AM
Question about marrow results. Mi!ey12873 Tell Your Story 3 Sun Dec 18, 2016 10:04 AM
Transplant question marmab AA 12 Thu Jun 5, 2014 09:52 AM
Cyclosporine taper question holmg418 AA 16 Mon Feb 25, 2013 01:42 AM
Question for Student Paper Krista Bone Marrow Failure 3 Mon Nov 12, 2007 06:25 AM


All times are GMT -4. The time now is 12:42 PM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org