Marrowforums
Mon Mar 6, 2017, 03:50 PM
The Aplastic Anemia and MDS International Foundation (http://www.aamds.org) (AAMDSIF) plans to create a new online health community focused on bone marrow failure diseases. Marrowforums and the PNH Support Group (http://www.pnhdisease.org) are helping with the planning, and the future of these forums may depend on the outcome.
To connect with other bone marrow failure disease patients and caregivers, do you prefer a forum site like this one, a Facebook group, a medical reference site, a blogging site, or some other type of health community site? How important is the ability to stay anonymous?
These and other questions are in a new AAMDSIF survey. We ask all patients, caregivers, and other Marrowforums members to take the survey and state your preferences.
Take the survey (https://www.surveymonkey.com/r/SYFRBHC)
To connect with other bone marrow failure disease patients and caregivers, do you prefer a forum site like this one, a Facebook group, a medical reference site, a blogging site, or some other type of health community site? How important is the ability to stay anonymous?
These and other questions are in a new AAMDSIF survey. We ask all patients, caregivers, and other Marrowforums members to take the survey and state your preferences.
Take the survey (https://www.surveymonkey.com/r/SYFRBHC)