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#1
Wed Oct 4, 2017, 05:45 PM
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Has Anyone Met Their Donor?
It looks as if my donor wants to communicate openly w/ me after almost 6 years. I'm obviously very anxious to do so, and I have sent them a thank you note a few years ago after the 1 yr waiting period or whatever it is. So what is it like meeting your donor? Were they as you expected them to be? Is there an ongoing relationship? I'm sure many others besides myself are curious.
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD. 
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#2
Wed Oct 4, 2017, 08:20 PM
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My husband's donor is from Poland so we haven't met in person, but have Skyped. They keep in touch via text on a pretty regular basis as well. It was a pretty overwhelming experience for both sides. Thanking the person that gave you a second chance at life is an indescribable opportunity. I think it also really helped her (the donor) understand the magnitude of what she did.
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Samantha, wife of Joe age 34; diagnosed vsaa 2012; MUD BMT February 2013
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#3
Thu Oct 5, 2017, 09:02 AM
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Donors are unknown in australia. Id love to be able to thank the person with a letter. Probably wouldnt do it in person to be honest.
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Now 30yr old. Diagnosed AML dec 2015 (Most likely MDS prior). Trisomy 6. Runx1 mutation also. Had induction and consolidation chemo. Marrow failure ++ so SCT on 21st of March with MUD. Married with a 1yr old!
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