Home         Forums  

Go Back   Marrowforums > Bone Marrow Failure Diseases > MDS
Register FAQ Search Today's Posts Mark Forums Read

MDS Myelodysplastic syndromes

Reply
 
Thread Tools Search this Thread
  #1  
Old Thu Oct 22, 2015, 10:07 AM
carrieridge carrieridge is offline
Member
 
Join Date: Jul 2014
Location: Bellflower, Ca
Posts: 30
RCMD to RAEB-1 - and a CT question

Is that the normal progression of MDS? I noticed my hubbys biopsy report of a year ago showed diagnosis of RCMD, the biopsy report now says RAEB-1. Is that how MDS progresses? His cytogenetics says 47,XY,+8(20), so all his cells show trisomy 8.

Does anyone on the board get CT scans? Would MDS show up on scans as far as how the bones look? While restaging his lymphoma it says "interval development of diffuse heterogeneus appearance of the thoracic osseous structures with multiple lucent foci that is most pronounced in the thoracic spine. Findings are nonspecific buy may represent lymphomatous involvement".

Both his oncologists (his lymphoma one and his MDS one) say that when you have bone marrow disease it can show like that on a ct scan, but they want an MRI to make sure it's not lymphoma. My hubby is refusing the MRI at this point.

So my question is about anyone's experiences with ct scans and MDS? anyone?
Reply With Quote
  #2  
Old Thu Oct 22, 2015, 10:14 AM
bailie bailie is offline
Member
 
Join Date: Dec 2013
Location: McMinnville,OR
Posts: 825
I have had CT scans. I would doubt that MDS would show anything on a CT scan. MDS can progress in many directions.
__________________
age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.

Last edited by bailie : Thu Oct 22, 2015 at 11:59 AM.
Reply With Quote
  #3  
Old Thu Oct 22, 2015, 10:27 AM
Data Data is offline
Member
 
Join Date: Sep 2014
Location: Florida
Posts: 245
Trisomy 8 Article

Carrieridge,
Here is the URL to an article on trisomy 8.

http://www.ncbi.nlm.nih.gov/pubmed/19811560

Good luck

Data
__________________
Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
Reply With Quote
  #4  
Old Fri Oct 23, 2015, 04:49 AM
Cheryl C Cheryl C is offline
Member
 
Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
CT scans are a type of X-ray. MRI's use magnetic fields and don't involve radiation. It depends on what is being looked for as to which one is more suitable. See http://hanfordsentinel.com/news/loca...9bb2963f4.html for more detailed information.

I have had both and I didn't find it frightening.
__________________
Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
Reply With Quote
  #5  
Old Fri Oct 23, 2015, 08:45 PM
traceyn11 traceyn11 is offline
Member
 
Join Date: Apr 2015
Location: Irvine, CA
Posts: 142
I have had both too just like Cheryl, but for me they were looking at my colon and lungs - but for infections, not MDS. The MRI was easier because there was no drinking the yucky contrast beforehand, but it does take longer and might be disconcerting if he is claustrophobic.
__________________
Tracey, mom & wife,age 58, dx MDS RAEB-2 4/15, normal cytogenetics, Update: SCT cancelled. Blasts at 67%. New dx AML.
Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Mum, 64yo just been diagnosed with RAEB 2 Eva's daughter MDS 12 Tue Oct 11, 2016 05:34 AM
Revlimid and High Risk MDS RAEB 2 - 18% Blasts Peachy MDS 21 Tue Mar 17, 2015 02:42 PM
Transplant question marmab AA 12 Thu Jun 5, 2014 09:52 AM
Definition of RCMD ? vikasgoyal MDS 1 Tue Mar 26, 2013 12:08 PM
Question Suzanne MDS 1 Mon Jun 30, 2008 09:59 PM


All times are GMT -4. The time now is 08:58 AM.


Powered by vBulletin® Version 3.6.7
Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.
Forum sites may contain non-authoritative and unverified information.
Medical decisions should be made in consultation with qualified medical professionals.
Site contents exclusive of member posts Copyright © 2006-2020 Marrowforums.org